Saturday, December 27, 2014

PEI Stroke Care Model "Caregiver Handbook"

Did you know that over 300 strokes occur on Prince Edward Island every year?

Are you a family member, caregiver or friend of a stroke survivor on Prince Edward Island.

Here is a valuable information resource for Prince Edward Islanders seeking information about recovering from stroke on Prince Edward Island.

PEI Stroke Care Model  "Caregiver Handbook"

Click Here to open the "Caregiver Handbook" PDF

and Heart & Stroke's "Let's Talk About Stroke" booklet

Click Here to open the "Let's Talk About Stroke" PDF

Both of the above PDF's can be downloaded to your computer's hard drive and/or printed out on your printer as handy reference material.

Please share the link to this post with others who may need this information.


Stroke survivor since 2002

Thursday, October 16, 2014

Our New Approach To Communication Meets The Challenge!!!

Nicole Caron
A guest post by:  Nicole Caron, the Social Media Manager at Voiceitt.

Voiceitt is an Israeli-based technology startup whose mission is to create innovative solutions that helps aid the lives of people with disabilities. The fundamental goal of VoiceItt is to foster independence and social inclusion for the disabled and improve their quality of life. Voiceitt is currently developing Talkitt, an innovative speech technology which is able to recognize unintelligible language and translate it into understandable speech. Ultimately, Talkitt is giving individuals with speech impairments their voice back! 

Until now, the approach taken by developers of assistive technology for people with speech disabilities has completely bypassed voice, opting to use other modes of communication including communication boards that replace speech with symbols and images, head-tracking, eye-tracking, and switches. There are no products on the market today that allow people with speech disabilities to communicate using the most natural means, their voice. This is the gap Talkitt is trying to fill. 

TalkItt is a step forward for better social inclusion for people that suffer from motor, speech, and language disorders; allowing users to freely express themselves and be understood with speed and ease. This innovative product is based on personalized speech recognition technology, which recognizes the user's speech and translates it into understandable language that is displayed on and vocalized by the user's device. TalkItt works on mobile and wearable devices, so it is portable and easy to use and without the stigma attached to clunky, obtrusive existing solutions (AAC). People with speech disabilities will be able to speak, and have TalkItt translate for them with minimal delay. The solution can be integrated to make phone calls, use social media, and activate smart phones and assistive devices, facilitating communication and control on all levels.

We have a basic pilot, however, Talkitt is currently in its developmental stage. Listed below are links to our company website and videos of individuals using Talkitt. We are collecting funds in order to further its production. In our efforts to raise money, we have launched an indiegogo crowdfunding campaign (link provided below) and have applied to various grants. We plan on having a basic Talkitt product out within 6-8 months.

The company video:

Different examples of usage:

Orit (CP) Pilot:

Jack (ALS) Pilot:

Indiegogo Crowdfunding Campaign:

Monday, June 16, 2014

"7 Steps to Stroke Recovery" A Video By The Stroke Recovery Association of British Columbia

This is a new tool to help long term stroke survivors with their recovery after stroke. There are more than 330,000 long term stroke survivors in Canada today. We want to help survivors to become part of their communities again. We also want to help communities embrace survivors to be part of the community again. Yes, there is life after stroke and we can all benefit because there is.

"We may begin as passive participants but with work and support we can soon be active participants within our communities". - Gary, stroke survivor since 2002

Follow the 7 steps to stroke recovery, work at it every day and NEVER, EVER give up.

With thanks to the Stroke Recovery Association of British Columbia.


We will be loading each section of the DVD separately in the coming days.
If you like this video please donate to SRABC at – thank you!
• The main question facing stroke survivors and caregivers after discharge from hospital is — “now what?”
• Not knowing where to go for help in the community, not knowing what is available and not knowing how to access programs is tremendously confusing and frustrating.
• Stroke survivors and family caregivers need relevant education and practical guidance on living life after stroke
• This educational DVD is a tool for anyone wishing to learn about stroke recovery.
• It outlines 7 Steps that will assist stroke survivors and caregivers in knowing how to continue the process of stroke recovery in the community after hospital discharge.
• It features interviews from stroke rehabilitation professionals such as doctors, occupational therapists, physiotherapists, and speech language pathologists. They speak directly about each step of recovery according to their expertise.
• It is also featured on the Stroke Recovery Association of BC website, SRABC’s YouTube channel and via social media.
• This DVD can be used as a whole or it can be shown in sections.
• The sections are as follows:
o Exercise and mobility
o Communication and language
o Social interaction and recreation
o Thinking, memory and perception
o Support
o Healthy lifestyle
o System navigation
• The presenter can stop the video in between sections and review the content with the audience/individual and answer any questions.
• The DVD can be used to promote group discussion.
• The DVD can be used to assist stroke survivors and caregivers to set goals for stroke recovery.
• The DVD can also be used as a promotional tool to explain the services we offer and as a resource for use in fund raising activities for SRABC.
• Vision – Every stroke survivor in BC has respect, inclusion, and support in their home community.
• Mission Statement – Through its local Stroke Recovery Branches, SRABC is committed to assisting stroke survivors and their caregivers throughout the province to improve their overall quality of life.
• The purposes of SRABC are:
o To assist stroke survivors and their caregivers throughout BC to improve their overall quality of life and remain living independently.
o To increase awareness within the community of the impact of stroke.
o To raise awareness in the community of the services offered throughout the Province to stroke survivors and their caregivers.
o To act as a resource for hospitals and for people concerned with the effect of
o strokes on individuals and their families.
o To plan and promote programs of education and of assistance to stroke survivors in BC.
o To disseminate information on stroke prevention.
• Programs and Services
o SRABC provides support and information to anyone whose life has been affected by stroke, and to other stakeholders in the field of stroke recovery, such as healthcare professionals. Our services offer support to stroke survivors which allows them to live independently in the community, thus alleviating the pressure on community health services. The inclusion and empowerment of stroke survivors and their caregivers in our communities enriches their diversity, and helps overcome the barriers to people with disabilities in accessing community services and resources.
o We have around 30 Branches throughout BC which offer a range of programs and services to assist stroke survivors and their caregivers. They provide a friendly social environment where stroke survivors and caregivers can get support and help in coping with life after stroke. Branches offer activities such as social events, exercise, communication and cognitive stimulation. In some Branches programs are run by professionals, such as physiotherapists, and in others they are volunteer-driven. Approximately one thousand individuals attend these programs. Recruitment of new members occurs through hospital visits, liaising with health services in hospitals and the community and connecting with social workers during discharge planning.
o Our educational materials are distributed regularly to health authorities, hospitals and rehabilitation centres throughout BC. We also respond daily to requests for information and referral by phone (1-800 number), email and from our website.
o SRABC also conducts research into community-based stroke recovery, supported by the University of BC, the Ministry of Health, Heart and Stroke Foundation, the Provincial Health Services Authority, Regional Health Authorities and grants and sponsorship from the private sector.

Tuesday, May 13, 2014

Creatively Recovering From Stroke

To days question: Have you self published yet? No, I'm not kidding you... My stroke buddy Frank Carl has just published his third book "Blood Moon Demon" on Kindle. This is his second that was published about a year ago in May 2013. Check it out!
This short novel begins with several humerous events in my life, leading up to the discovery of a novel I began in 2001 and then packed away in 2003 after...

Wednesday, April 23, 2014

The Superman Of Stroke First Responders

The battle with stroke goes mobile with improved communication and CT Scanner Technology...

Article credit   on 

Specialized Stroke Ambulance Features CereTom Portable CT Scanner to Reduce Time to Treatment

NeuroLogica and MEYTEC from Germany have developed a specialized stroke ambulance, called VIMED STEMO, that carries a portable CT scanner and a point-of-care laboratory for nearly-instant diagnosis and initiation of treatment in stroke patients. It employs MEYTEC’s telemedicine solutions and NeuroLogica’s portable CT scanner, CereTom.
The VIMED STEMO integrates a fully-functioning pre-clinical stroke care suite, comparable to those found in specialized stroke hospitals. The onboard CereTom is a 8-slice CT scanner that allows for multimodal imaging with CT angiography and CT perfusion in combination with a rapid scan time. Imaging and other data can be transmitted over encrypted 3G, 4G and satellite connections to emergency rooms or trauma centers.

In addition to being well-equipped, the ambulance also carries the best medical team you could get delivered to your door when you might be suffering from a stroke, including a paramedic, a stroke physician and a neuroradiologist. All together, this enables hyper-acute stroke care, including thrombolytic treatment as soon as possible, well before arrival at a hospital. No word on how much this all costs per trip.
Of course, the question remains whether this hyperacute care translates in better patient outcomes, but the companies have already conducted a randomized trial that provides some clues. They randomized 100 patients to either the stroke ambulance or usual emergency care. Unsurprisingly, pre-hospital stroke treatment greatly reduced the median time from alarm to therapy decision (35 versus 76 min) with similar gains in times from alarm to end of CT, and alarm to end of laboratory analysis, and to intravenous thrombolysis for eligible ischaemic stroke patients.
There was no substantial difference in neurological outcome between the groups, however the current study was not powered to detect such a difference and follow-up was relatively short. It does show that pre-hospital stroke diagnosis and treatment is feasible and may reduce time-to-treatment to a level that was previously unreachable. The VIMED STEMO is currently embedded in the emergency service system of Berlin.
More info: Project STEMO…

Tuesday, April 8, 2014

Do You Get Excited When You Find A New Tool?

My relationship with StrokeLink has run hot and cold since we have first met. Over the past few years we have exchanged emails and discussions about why their first app was only available on Apple and geared more toward health care professionals rather than persons who have been affected by stroke.

My hope is that this latest app offering by StrokeLink has been directed a little more toward the many, many stroke warriors who are faced with the long road to recovery after stroke. Survivors, family members, caregivers, friends and health care professionals. Why not give it a try and let me know what you think.

I get excited every time I find a new tool that may offer help with the challenges of long term stroke recovery.

I hope you get excited too and I would love it if you would share your finds with us by posting a comment (and/or a link) to this blog... Thanks!

My Stroke Passport is now available on the App Store!
View this email in your browser

My Stroke Passport:
The Journey Starts here.

Introducing our Newest App for Stroke Survivors & their Circle of Care

My Stroke Passport is a mobile toolkit of comprehensive resources for stroke survivors and their caregivers throughout the care journey. Gain a better understanding of your care team, prevent a secondary stroke and learn coping strategies to living with the effects of stroke. This is the stroke survivors passport to recovery!

My Stroke Passport contains:
- 434 essential, high quality resources and links
- 100% aphasia-friendly and audio-enabled
Available for download now on the iPhone, iPad and iPod Touch!
Android Coming Soon.
Copyright © 2014 StrokeLink, All rights reserved.

Thursday, February 20, 2014

Stroke Victim? Survivor, Triumphant or STROKE WARRIOR!!!

Gary center - Receiving recognition as a Provincial Library volunteer
Maybe I was a stroke victim and maybe I never was. There was a period of about six weeks post stroke when I couldn't walk. In fact, for part of that time I was bed-fast and in a coma. I never lost the will to recover and with the much appreciated help and support of friends, family and health care professionals I was able to stand and then walk short distances before I left rehab. Determined to walk I established a personal routine of walking while at the same time learning to work within the confines of severe fatigue, balance issues and Left side deficit. Now, almost 12 years post stroke I still struggle with fatigue, noticeable balance issues and Left side deficit but I maintain a regular routine of walking as part of my recovery. I have never considered myself a victim but rather a survivor or as some have termed it "Stroke Triumphant": "STROKE WARRIOR". Three keys to recovery are to maintain a positive attitude, set attainable goals and work at it every day. Also, a forth very important key is  - NEVER, EVER GIVE UP!!!

Tuesday, January 7, 2014

A Question Of Trust

The Question: As a stroke survivor, caregiver, family member or health care professional are you concerned about where to find trustworthy health and safety information?

Submitted resource:

When given the challenge of recovering from a stroke, it’s important not to become overwhelmed with the flurry of information, tips, and guides that follow. Survivors and caregivers must sort through these readings and find the most trustworthy sources, without a clear solution on where to go first. The American Recall Center aims to make that easier.

With a focus on making medical news easy to understand, The American Recall Center offers news and safety updates on important health topics. From dangerous prescription medications to steps to avoid a potential hip replacement, our site always has the patient’s best interest in mind.

By breaking down the FDA’s jargon-filled news and updates into straightforward terms and put them in plain-language, patients can go into a doctor’s visit with knowledge and confidence to know exactly what questions matter to ask.

Another helpful offering on the site is Patient Safety Alerts, a notification system that sends personalized updates on the medications that matter to you. Simply select the drug or medical device categories relevant to you, and when the FDA releases a safety update pertaining to that category we send an update to your email. Never worry about missing news that can affect your health and save time by signing up for Patient Safety Alerts.